I'm going to attach some of my test result here and there on this 2nd part of my article. If you want to read the Part 1 where I detailed the timeline and symptoms I felt, you can find it here
May 13, 2021
2 weeks after my first (and miserably failed attempt of) Bronchoscopy, I had another Bronchoscopy. After about 10 days, the Pulmonologist called to inform me that what I have is a tumor. I still need to have it taken out and all but there is nothing to be worried about. I praised God and then called my Husband and my parents immediately. I knew they were worried sick.
TUMOR TYPE: Unknown primary malignant neoplasm (NOS)
But a couple of days later, I received another phone calls from my Pulmonologist updating the result. It turned out to be a Cancer of "an exceedingly rare entity". I didn't call anyone that day. I sat in my kitchen, crying.
Dr. xxxxx has diagnosed the lesion as sclerosing mucoepidermoid carcinoma. Dr. xxxxx indicates in his report that this is an exceedingly rare entity with fewer than 40 reported cases in the literature. All of the previously reported cases arose in major or minor salivary glands, and none were primary lung tumors. FINAL DIAGNOSIS A. LEFT MAIN BRONCHUS MASS, DEBULKING: BIPHASIC / FIBROEPITHELIAL LESION (SEE COMMENT). B. LEFT MAIN BRONCHUS MASS #2, DEBULKING: BIPHASIC / FIBROEPITHELIAL LESION (SEE COMMENT). COMMENT: A diagnosis of tracheobronchial fibroepithelial polyp is favored, but due to the rarity of this entity, slides from the case have been submitted for expert consultation. Intradepartmental consultation was obtained with concurring opinion.
My Pulmonologist set me up with an Oncologist and Thoracic Surgeon whose both agreed that a PET Scan is needed to ensure the diagnosis. Sadly, PET Scan only revealed another concerning mass on my left lower back.
June 21, 2021
I had a Biopsy for a small mass on my left lower back muscle. The length of the process it took from when I got in the ER to the day I actually had a treatment done was pretty long. And none of my long list of Specialists can tell me my life expectancy, what caused my Cancer, or how did I go from perfectly healthy to have lost one LUNG in about a year. I can't tell if it's the rarity of my case, the whole Covid situation, or something else. It was frustrating. And I was still mourning. Though not a single soul know that I am.
FINAL DIAGNOSIS A. PARASPINAL MASS, LEFT, CORE BIOPSIES: METASTATIC MODERATELY-DIFFERENTIATED NONSMALL CELL CARCINOMA WITH "SQUAMOID" FEATURES, COMPATIBLE WITH DERIVATION FROM A LUNG PRIMARY (SEE MICROSCOPIC DESCRIPTION AND COMMENT). TUMOR MOLECULAR PROFILING STUDIES, PENDING. BEST BLOCK FOR FUTURE STUDIES - A1. COMMENT: As per review of this patient's electronic medical record, her previous biopsy of "left main bronchus mass" (previous specimen #: S21-8138, 05/08/21), with a diagnosis of "sclerosing mucoepidermoid carcinoma" is noted (for a more detailed description, please refer to this previous report). The findings in this sample are compatible with a metastasis from this patient's previously diagnosed "left main bronchus" sclerosing mucoepidermoid carcinoma. It is of note that "sclerosing mucoepidermoid carcinoma" can also arise within the thyroid and salivary glands, and if clinically feasible, exclusion of these regions as possible sites of origin for this lesion may be warranted. This case is reviewed in intradepartmental consultation with a concurring opinion.
July 14, 2021
My left Lung Removal Surgery was done on a 6-7hours open thorax Surgery.
October 16, 2021
Removal of a small piece of my left low back muscle was done on an Outpatient Surgery.
and my road to recovery began.
December 23, 2021
A CT Scan with Contrast was done. Something doesn't look completely OK around my stomach area.
There is rim enhancing intramuscular masslike lesion in the posterior musculature in the left lower abdomen/lumbar region. This is at the level posterior to the left L3 and L4 transverse processes. Series 406/image 88. The enhancement extends towards the skin in a linear fashion. The central area of the lesion is of fluid-like hypodensity. This is nonspecific. This could be an infectious or inflammatory process. However because of patient's history of primary neoplasm, metastatic lesion is also a consideration.
I am still in a battle as I type.
To those experiencing the same thing as me, I see you. I feel you. My heart goes out to you. Reach out to me. Talk to me.